Dealing with a Diagnosis of Dementia
Having to face an uncertain future where life’s most precious memories are no longer accessible is something many of us can’t even imagine. Yet, this is a diagnosis that millions of people around the world face every year.
You will undoubtedly face a range of emotions after receiving your diagnosis and you may not know where to turn for help. One of the first things you should do is sit down with your family to discuss the situation and to plan ahead for the upcoming changes. This includes establishing some guidelines for care, determining alternate living possibilities, and meeting potential financial obligations that the future may bring.
Here are some tips to help ensure that the person with the diagnosis and their family members have their needs and wishes are met as the disease progresses:
Learn as much as you can about the disease
Educate yourself on symptoms and what changes you might expect. Knowing what challenges may lie ahead makes it easier to plan for and deal with them. Talk to your doctor about possible treatment options and what your or your loved one’s specific prognosis is. Contact your local Alzheimer’s Association chapter and ask them for information and resources for assistance.
Appoint a Power of Attorney/Health Care Proxy
Because there will likely come a time when the person can no longer make decisions for him/herself, it’s important to find someone trustworthy to make both medical (Health Care Proxy) and financial decisions (Power of Attorney) on the person’s behalf when that time comes. Consult with an elder law attorney to best understand your options, what’s involved and to complete the formal documents that will make it all legal.
Develop a plan of care
If the person’s spouse is still alive and healthy, it’s likely he/she will become the primary caregiver. But caregiving is a highly demanding role and requires the assistance of more than one person. Create a plan of who is available and when to assist with caregiving duties.
Create a routine
As the disease progresses, anything new and strange may appear threatening to someone with memory loss. People with dementia tend to thrive on familiarity. It helps ground them and make sense out of what may be becoming a more confusing world. When someone with memory loss recognizes something – like their favorite breakfast food, a favorite knickknack, or the morning paper – the more they understand the world.
Investigate alternate living/care options
When the time comes when it is no longer safe for your loved one to live on their own, you may need to research alternate living options. Charlesgate has a special secure unit, dedicated to those living with memory loss. We provide professional nursing services, social services, dining services and recreational programs to help residents maintain optimum health and stay engaged in life.
Caring for a person with dementia can be an extremely disheartening experience. Being asked the same question several times in a short amount of time or dealing with unusual behavior can become tiring. Always remember that your loved one isn’t doing any of this on purpose and if they knew what was going on, they would most likely be ashamed. Look for the person who you knew and loved before the disease and help that person make the best of a challenging situation.
Accept help from others
Don’t be afraid to reach out to other family members and friends for support, whether that is having them spend some time with your loved one so you can run errands, or just spending some time with you to share your feelings of how your new circumstances are affecting you.